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Rare Disorders

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National Organization for Rare Disordersmore details
Federation of voluntary health organizations dedicated to helping people with rare orphan diseases and committed to the identification, treatment, and c...
Office of Rare Diseases Researchmore details
Coordinates research and information on rare diseases and provides information for patients and their families with rare diseases and about NIH- and ORD...
Progeria Research Foundationmore details
Committed to raise awareness, educate and help the families, doctors and researchers about Hutchinson-Gilford Progeria Syndrome and to fund medical rese...
Cherubsmore details
Support and Research Organization for families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.